Id 93
Topic Community
Main Speaker Alexandra Wray UK
Co Speakers Abayomi Salawu UK, Nathalie Martin UK

Attendees
Extra Fees 

Individuals living with acquired brain injury (ABI) and their families often face significant challenges during rehabilitation and beyond, with many experiencing fragmented care and a lack of coordinated support. Critical issues and opportunities in rehabilitation have been identified in African countries. Significant gaps exist in rehabilitation services, with at least 63% of people in need not receiving the required care. This workshop explores an innovative partnership between a neurorehabilitation ward in secondary care and a brain injury charity, which has led to the co-development of a rehabilitation pathway designed to improve patient outcomes and provide holistic support for families. Case study discussions showcasing real-world impacts on patients and families will be shared. Findings from a participatory research project conducted with families affected by ABI will be shared. This research engaged family carers as co-researchers to explore their needs, support experiences, and barriers to accessing services. The insights gained directly informed the development of a support programme for families, ensuring that services align with the lived experiences of those most affected. The participatory research project used creative research methods including Photovoice Methodology. Photovoice empowers individuals to document and share their lived experiences through photography. This approach is particularly valuable for research with families affected by acquired brain injury (ABI), as it provides a visual and narrative platform to express challenges, needs, and coping strategies in ways that traditional interviews or surveys may not capture.