Date: Wednesday 5 Nov. 2025

Id 93
Topic Community
Main Speaker Alexandra Wray UK
Co Speakers Abayomi Salawu UK, Nathalie Martin UK

Individuals living with acquired brain injury (ABI) and their families often face significant challenges during rehabilitation and beyond, with many experiencing fragmented care and a lack of coordinated support. Critical issues and opportunities in rehabilitation have been identified in African countries. Significant gaps exist in rehabilitation services, with at least 63% of people in need not receiving the required care. This workshop explores an innovative partnership between a neurorehabilitation ward in secondary care and a brain injury charity, which has led to the co-development of a rehabilitation pathway designed to improve patient outcomes and provide holistic support for families. Case study discussions showcasing real-world impacts on patients and families will be shared. Findings from a participatory research project conducted with families affected by ABI will be shared. This research engaged family carers as co-researchers to explore their needs, support experiences, and barriers to accessing services. The insights gained directly informed the development of a support programme for families, ensuring that services align with the lived experiences of those most affected. The participatory research project used creative research methods including Photovoice Methodology. Photovoice empowers individuals to document and share their lived experiences through photography. This approach is particularly valuable for research with families affected by acquired brain injury (ABI), as it provides a visual and narrative platform to express challenges, needs, and coping strategies in ways that traditional interviews or surveys may not capture.

Chair Alexandra Wray

11H Introduction: overview of objectives and topics.

11H05 Overview of the charity services.

11H15 Overview of the partnership between charity and acute services.

11H25 Key findings from a participatory research project.

11H35 Screening of an animation created by families to instil hope to others living with ABI.

11H40 OC ID 348 Development of the ClinFIT Community Questionnaire for Assessing Functioning Levels in Primary Care Settings. Fatimah AHMEDY

11H45 OC ID 546 The International Spinal Cord Injury Community Survey: preliminary results from data collection in Cameroon. Simforian Kambou

11H50 OC ID 133 Resting-EEG Theta Power Increase Following Rehabilitation in Chronic MCA Stroke Patients with Upper-Limb Impairment. Rebeca Pardo-Garcia

11H55 SUMMARY